IBMFS Disorders

Fanconi Anemia

Dyskeratosis Congenita and Telomere Biology Disorders

Shwachman Diamond Syndrome

Diamond Blackfan Anemia

Other Bone Marrow Failure Syndromes

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How can I join?

Individuals with one of the inherited bone marrow failure syndromes and their family members are encouraged to participate.

Phone: 1-800-518-8474 to speak with the referral nurse
Email: NCI.IBMFS@westat.com