IBMFS Resources

Additional information about some of the [glossary term:] inherited bone marrow failure [glossary term:] syndromes may be found at various websites, only a few of which are listed below. Listing of these sites does not constitute an endorsement of their services, nor are we responsible for the accuracy of the information found on these sites.

IBMFS Newsletters

Disease-specific websites:

General Sites for information about bone marrow failure, [glossary term:] aplastic anemia, [glossary term:] cancer, or genetics:

Join Us comment icon

How can I join?

Individuals with one of the [glossary term:] inherited bone marrow failure [glossary term:] syndromes and their family members are encouraged to participate.

Phone: 1-800-518-8474 to speak with the referral nurse
Email: NCI.IBMFS@westat.com