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Government Funding Lapse

Because of a lapse in government funding, the information on this website may not be up to date, transactions submitted via the website may not be processed, and the agency may not be able to respond to inquiries until appropriations are enacted. The NIH Clinical Center (the research hospital of NIH) is open. For more details about its operating status, please visit  cc.nih.gov. Updates regarding government operating status and resumption of normal operations can be found at OPM.gov.

Inherited Bone Marrow Failure Syndrome Research Studies (IBMFS)

Current Research Studies

The goal of our research studies is to reach a better understanding of how cancers develop in persons with an Inherited Bone Marrow Failure Syndrome, so that we may improve the health care that can be offered to persons with these disorders.

Fanconi Anemia Cancer Screening Research Study

The Fanconi Anemia Cancer Screening Research Study seeks to improve cancer screening in people diagnosed with Fanconi Anemia (FA) by a comprehensive cancer program including incorporation of non-invasive oral cancer screening techniques to determine if this practice improves early cancer diagnosis and overall clinical care.

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Inherited Bone Marrow Failure Syndrome Research Study

Over the past several decades, researchers and clinicians at the National Cancer Institute have studied individuals with Inherited Bone Marrow Failure Syndromes to better understand their genetic causes and medical complications, and to improve the health care for persons with these disorders.

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