IBMFS Disorders
Dyskeratosis Congenita and Telomere Biology Disorders
Other Bone Marrow Failure Syndromes

How can I join?
Individuals with one of the inherited bone marrow failure syndromes and their family members are encouraged to participate.
Phone: 1-800-518-8474 to speak with a member of our research team
Email: NCIFamilyStudyReferrals@nih.gov