Resources

IBMFS Newsletters

• 2023 Newsletter (PDF, 985 KB)
• 2022 Newsletter (PDF, 756 KB)
• 2019 Newsletter (PDF, 1.2 MB)
• 2016 Newsletter (PDF, 843 KB)
• Brochure (PDF, 124 KB)

Disease-specific Websites

• Diamond Blackfan Anemia Foundation, Inc.
• Diamond Blackfan Anemia Registry
• Team Telomere 
• Fanconi Anemia
• Fanconi Canada
• Shwachman Diamond Alliance
• Shwachman Diamond Syndrome Foundation
• Shwachman-Diamond Syndrome Registry
• Severe Chronic Neutropenia International Registry
• Aplastic Anemia & MDS International Foundation, Inc.

General Sites for Information about Bone Marrow Failure, Cancer, or Genetics:

• National Organization for Rare Disorders
• Find a Genetic Counselor

Videos:

• Telomere Biology and Cancer Risk with Dr. Sharon Savage (full)
• Fanconi Anemia 101, Dr. Blanche P. Alter